Privacy Policy

Seizure Support (SS) – Privacy Policy

Last Updated: 20th July 2025

1. Introduction

Seizure Support (“SS”, “we”, “our”, “us”) is committed to protecting your privacy and personal information. This Privacy Policy explains how we collect, use, and protect your data when you visit our website [seizuresupport.org], donate to our cause, join the Global Epilepsy Forum (GEF), or otherwise interact with us online.

We operate under the principles of transparency, confidentiality, and respect for your rights.

2. Information We Collect

We may collect the following information:

a) Information You Provide to Us

• Contact details (name, email address, phone number) when you sign up, contact us, or request information.
• Account information when you register for the GEF member forum.
• Donation information (name, address, payment details) when you contribute to our work.
• Survey or feedback responses when you engage with SS programs.

b) Information Collected Automatically

• Technical information such as your IP address, browser type, device type, operating system.
• Usage data including pages visited, time spent, and clicks.
• Cookies and similar technologies for site functionality and analytics.

c) Sensitive Information

• For GEF members, you may choose to share health-related information (e.g., epilepsy type, seizure history). This is voluntary and will only be used for community support, research, or awareness purposes with your explicit consent.

3. How We Use Your Information

We use your information for:

1. Providing services – to manage GEF member accounts, send updates, and provide support.
2. Donor relations – to process donations, issue receipts, and update you on our impact.
3. Website functionality – to ensure the site and portal work properly and securely.
4. Communications – to send newsletters, advocacy updates, and relevant opportunities (you may unsubscribe at any time).
5. Research & advocacy – to improve epilepsy awareness and support services (with consent for any personal or health data).

4. Sharing Your Information

We do not sell your personal information. We may share limited data:

• With service providers (e.g., payment processors, web hosting) for operational purposes.
• When required by law or to protect rights and safety.
• Within GEF – only with your consent, to connect members or share stories.

5. Data Storage & Security

We store your data securely using encrypted connections (SSL/HTTPS) and trusted hosting providers.
Access to personal data is restricted to authorized SS staff and GEF administrators.

We keep your data only as long as needed for the purposes outlined here or as required by law.

6. Cookies & Tracking

Our site uses cookies for:

• Essential site functions.
• Analytics to improve performance.
• Remembering login details for GEF members.

You can control or disable cookies via your browser settings.

7. Your Rights

You have the right to:

• Access the personal data we hold about you.
• Request correction or deletion of your data.
• Withdraw consent for certain uses (like email updates or health info sharing).

Requests can be made by emailing info@seizuresupport.org

8. Children’s Privacy

Our website is not directed to children under 13 without parental consent. GEF membership is intended for individuals aged 16 and above unless approved by a guardian.

9. International Visitors

If you are accessing our website from outside Uganda, please note your data may be processed in Uganda and other countries where our service providers operate. We take reasonable steps to protect your data wherever it is processed.

10. Changes to This Policy

We may update this Privacy Policy periodically. Changes will be posted on this page with an updated “Last Updated” date.

11. Contact Us

For questions or to exercise your privacy rights, contact:

Seizure Support (SS)
Email: info@seizuresupport.org
Website: https://www.seizuresuport.org
Address: Plot 66A2-1, Nkokonjeru court, Mbale city