Category

Misinformation

This deals with debunking wrong information about epilepsy

This is one of those questions that really depends on the person. For some PWEs, watching someone else have a seizure doesn’t affect them at all. But for others — and I include myself here — witnessing a seizure can actually trigger one. Yep, it happens. For me, it’s mostly about fear and stress. Seeing...
This is a question most Persons With Epilepsy (PWEs) will never get tired of asking. It strikes at the very heart of our hope: the dream of one day getting rid of seizures forever. I’ve asked myself this question many times, and I know how deeply it matters to every PWE. The truth is, the...
For most health conditions, conversations may be difficult, but they’re at least possible. Epilepsy is different. It sits in the shadows—wrapped in stigma, silence, and misunderstanding. Over the years, I’ve seen how this silence isolates people and allows harmful myths to thrive. But why has epilepsy become such a taboo subject? The answer begins with...
Few topics stir more debate on our forum than driving and riding. For PWEs, transportation isn’t just about mobility — it’s about responsibility. For those diagnosed later in life, giving up driving can feel like losing independence. Others, whose seizures are well-controlled, believe they can still manage the risk. But epilepsy changes the equation: the...
One of the hardest things for PWEs to explain to family and friends is why they often avoid ceremonies — weddings, cultural gatherings, or large public meetings. Unlike partying, these aren’t wild nights out; they are often respectable, once-in-a-lifetime events. So why do PWEs avoid them? The answer is simple: fear. The greatest fear for...
For anyone who has ever played video games, the warnings at the beginning of most games are familiar: flashing lights, rapidly changing patterns, or intense visual sequences can trigger seizures in some players. While many gamers skim past these warnings, they exist for a very real reason. For Persons With Epilepsy (PWEs), these flashing lights...