Epilepsy is a vast and complex challenge—one that no single organization, volunteer, or treatment can fully address alone. In Uganda, where healthcare gaps, low awareness, and limited access to medication make living with epilepsy even harder, the struggle is especially intense.
It’s within this reality that I founded Seizure Support: a community-led initiative dedicated to empowering Persons With Epilepsy (PWEs) and raising awareness about this often-misunderstood condition. My name is Isaac Salira, and I’ve lived with epilepsy for more than 15 years. I know firsthand the daily battles—social stigma, fear, inconsistent treatment, and the loneliness that comes with feeling misunderstood. These experiences have shaped my passion and drive to build something meaningful, practical, and lasting.
Seizure Support is made up of people like me—epilepsy survivors from Uganda—who understand the reality of the condition from the inside. Together, we’ve built a growing platform that supports PWEs not only in Uganda but also across the world. Our belief is simple but powerful: even small, well-targeted interventions can spark meaningful change. One person’s breakthrough can ripple outward to strengthen families, communities, and entire systems of support.
Over time, our work has evolved and sharpened around four main causes. These causes form the backbone of everything we do:
Epilepsy Management Guide (EMG): I created the EMG as a practical handbook that blends medical knowledge with lived experience. It equips PWEs, families, and caregivers with strategies for seizure control, medication use, and lifestyle management—empowering people to take charge of their condition and build stable, independent lives.
Seizure Support Patient Portal (PP): We built the Patient Portal as a secure online system where PWEs can create personal health profiles, document their seizure history, and share vital information with our team. This helps us offer personalized support, gather collective data, and strengthen research-driven insights.
Global Epilepsy Forum (GEF): Through the Forum, we connect people with epilepsy across borders, fostering community, knowledge sharing, and solidarity. It’s a safe space to speak openly, exchange experiences, reduce stigma, and remind each other that none of us is alone in this journey.
Sensitization & Awareness (S&A): We reach out to schools, communities, and health workers with clear, factual information about epilepsy. By challenging myths and replacing them with understanding, we build inclusive and compassionate spaces where PWEs can live openly and with dignity.
My mission goes far beyond offering short-term help. I’m building a sustainable ecosystem where people with epilepsy can thrive—not just survive. By combining lived experience, modern technology, and community-driven action, Seizure Support is steadily creating real change where it matters most: in people’s everyday lives.
This journey isn’t mine alone. Whether through donations, partnerships, or volunteering your time, you can play a part in transforming how epilepsy is understood and supported.
Every action counts. Together, we can build a world where epilepsy is met not with fear or stigma—but with knowledge, solidarity, and hope.
To know more about what we do, please click HERE. We also have a donation page where those who feel compelled can give whatever they can afford by clicking HERE.
