One of the most overlooked epilepsy management strategies is companionship — specifically, sleeping with a trusted companion. Most seizures that happen at night go unnoticed by the PWE, since they are unconscious during the event. You may only wake up feeling “strange” without knowing what occurred. A sleeping companion can provide vital observations: Did you...

Taking medication every day for life is already hard. Adding strict schedules makes it even tougher. But for Anti-Seizure Drugs (ASDs), timing is everything. ASDs work by maintaining a steady level of medication in your body. Missing a dose or taking it late can cause levels to drop, opening the door for breakthrough seizures. That’s...

For many PWEs, walking is the safest way to move around. But even this has risks that must be managed. One of the simplest yet most effective safety tips is to always walk facing oncoming traffic — left side in Commonwealth countries, right side in American systems. Why? Because it reduces the chance of being...

Few topics stir more debate on our forum than driving and riding. For PWEs, transportation isn’t just about mobility — it’s about responsibility. For those diagnosed later in life, giving up driving can feel like losing independence. Others, whose seizures are well-controlled, believe they can still manage the risk. But epilepsy changes the equation: the...

One of the hardest things for PWEs to explain to family and friends is why they often avoid ceremonies — weddings, cultural gatherings, or large public meetings. Unlike partying, these aren’t wild nights out; they are often respectable, once-in-a-lifetime events. So why do PWEs avoid them? The answer is simple: fear. The greatest fear for...

For every Person With Epilepsy (PWE), one of the most challenging aspects of managing the condition is navigating the complex world of Anti-Seizure Drugs (ASDs). Much like other health conditions, there is a constant battle among different ASDs—manufacturers, brands, and types all claim to be the best for particular forms of epilepsy. Older medications like...

One of the first things every Person With Epilepsy (PWE) learns after diagnosis is an unavoidable truth: from this point forward, their life is, in many ways, at the mercy of Anti-Seizure Drugs (ASDs). To a PWE, these medications are not just pills—they are the fine line between safety and danger, the difference between normalcy...

Epilepsy is a vast and complex challenge—one that no single organization, volunteer, or treatment can fully address alone. In Uganda, where healthcare gaps, low awareness, and limited access to medication make living with epilepsy even harder, the struggle is especially intense. It’s within this reality that I founded Seizure Support: a community-led initiative dedicated to...

Epilepsy, one of the world’s oldest recognized neurological disorders, has perplexed humanity for millennia. Characterized by recurrent, unpredictable seizures, epilepsy has been both a medical and social challenge, affecting millions across cultures, geographies, and eras. Early societies often attributed seizures to supernatural forces, curses, or divine punishment, casting persons with epilepsy (PWE) as outcasts or...